Apologies for some late news that you probably already knew about, but last week Eddie made a surprise appearance at a benefit for kids with Epidermolysis Bullosa. Ed joined the band Big Daddy Sunshine for three covers, and he and his wife, Jill, visited some of the kids afterwards.
Ed also sat down briefly with MTV to discuss the experience:
The EB fundraiser in San Jose was a smaller, grassroots event, but the impact of meeting these incredible kids and their parents was huge. I’ve only been aware of this disease for a few years and not many people are currently aware of it, though it affects one in every 50,000 children. Because of major advances in stem cell research, the non-controversial kind, it appears that a cure could someday be a reality. But only if the good doctors and researchers can acquire further funding, whether privately or through our government.
